Why is it so difficult for patients with rare diseases to find life-saving drugs?

At the end of 2015, a microblog seeking drugs touched the hearts of many people. Xiao Xue, a 12-year-old Anhui girl, was admitted to Anhui Tumor Hospital for malignant advanced ovarian germ cell tumor. This kind of disease that only a few people suffer from every 10,000 people, once handled improperly, the patient may lose fertility and even endanger his life. Although the operation went smoothly, Zhao Weidong, the attending physician of Xiao Xue, encountered unexpected difficulties when undergoing chemotherapy after the operation. A kind of essential drug called [Pingyangmycin], few pharmaceutical enterprises in China continue to produce it, and hospitals have been out of stock for a long time. After searching Hefei, nothing has been found. However, Dr. Zhao Read More …