How to Improve the Quality of Life of Myasthenia Gravis Patients

What should be paid attention to in the diet of myasthenia gravis patients?

Western medicine does not have too many restrictions on the diet of myasthenia gravis, while traditional Chinese medicine suggests eating less cold food, such as mustard, radish, mung bean, kelp, laver, watercress, day lily, sword flower, watermelon, balsam pear, etc.

Eat more foods rich in high protein, such as chicken, duck, fish, lean meat, tofu, soybeans, eggs, vegetable protein and animal protein, as well as fresh vegetables and fruits, and pay attention to the digestibility of food.

Should Myasthenia Gravis Patients Pay Attention to what in Their Life?

This disease is a chronic disease with a long course of disease. Patients need to pay attention to the following points in life:

1. To establish confidence and determination to fight diseases for a long time, reduce psychological burden, avoid mental stimulation and excessive mental fatigue, insist on taking medicine and keep in touch with doctors regularly;

2. Pay attention to moderate exercise and exercise to enhance physical fitness, but do not exercise too much. Blindly increasing exercise will not benefit the patient, but will aggravate fatigue. Therefore, the patient should choose some exercises that are helpful to restore health according to his own situation. We suggest walking in combination with appropriate physical exercise, pay attention to self-protection during exercise, and avoid falling down.

3. Prevent upper respiratory tract infection, adapt to changes in the natural environment, and properly control and arrange clothing, diet, daily life, work and rest. In the flu season, try to go to public places as little as possible, pay attention to food hygiene to prevent diseases from entering from the mouth, and treat colds as early as possible to avoid serious consequences secondary to infection.

Do myasthenia gravis patients still need exercise?

Since the main symptoms of myasthenia gravis are myasthenia and fatigue, Therefore, the value of exercise therapy in its treatment is highly controversial. There are few studies on evaluating exercise therapy and myasthenia gravis. However, referring to the research results of other neuromuscular diseases, it can be seen that exercise is beneficial to motor neuron diseases, motor nerve root diseases, peripheral neuropathy, neuromuscular junction transmission disorders and muscle diseases.

Methods include aerobic activity, breathing training, balance training and flexibility training. Becker’s research team found that aerobic activity can reduce fatigue in myasthenia gravis patients by means of low-intensity aerobic activities such as swimming, walking and jogging. Patients can obtain higher quality of life and complain of improvement in fatigue.

Rassler’s research team evaluated the role of respiratory training in myasthenia gravis. Patients were required to undergo respiratory training five times a week and 30 minutes of normal carbonic acid respiratory intensive training each time. After 4-6 weeks in a row, patients were found to have increased respiratory tolerance, weight loss and improved respiratory myasthenia symptoms.

Limited research shows that exercise is not a taboo for myasthenia gravis. Proper exercise under the guidance of professionals may help improve the quality of life and relieve symptoms of patients.

Matters needing attention in exercise of myasthenia gravis

There are the following suggestions and guidance for exercise of myasthenia gravis patients:

1. Avoid activities and running in extreme climate;

2. Avoid long-term endurance exercises, such as running more than 20km;

3. Explore the exercise intensity suitable for running, mountaineering and going upstairs;

4. Exercise after full sleep and avoid stress;

5. Exercise at the best of the day.

Author: Huashan myopathy group

The article was reprinted by Clove Garden authorized by the author.